Hurrah for charity shops! I was in the Helen and Douglas
House Hospice shop in Chipping Norton on Saturday - the top performing of the 30
plus shops the Hospice runs! Well supplied by the "Chipping Norton
set" its a rather good place to secure some up market goods at reasonable prices. A Paul
Smith suit in the window didn't fit, but a bargain at £150. Get there
quick! Of course, I'm not sure I'd
actually want to know if the splendid tweed jacket I bought was from Jeremy
Clarkson but perhaps it was a Cameron cast off? They are both big supporters of
the Hospice.
As indeed am I; I was persuaded by Angela, the Manager
of the Chipping shop, to put up for a trustee position and I was appointed a
trustee about 6 months ago. I thought it would do me good to see governance
from the other side, so to speak. I've now been at 3 trustee meetings and
found it all very revealing. There are challenges yes, but also opportunities
for growth. This was the very first children's hospice in the world, founded by
the All Saints Sisters of the Poor. In fact an interesting link for me because
this Anglican order of nuns was set up in the Church I attend in London; All
Saints, Margaret St, Buttterfield's masterpiece. Once a very great order of
nuns, it has declined, as have most of the religious houses. They moved from
Margaret St some time back and the mother house is now in Oxford. The Helen
House Hospice was established in the grounds of the convent, and later they
built a Hospice (Douglas House) for younger adults when they found that the
sick children they were caring for were living longer .
A number of us met the founder, Sister Frances last week
to hear her account of the establishment. What I thought interesting was the
opposition from the medical establishment of the time to the set up of the
hospice. The view of the consultants and management was that the care of dying
children was the NHS responsibility and they should be in charge. What they
missed was patient and family choice. It's sad that so often doctors don't
always understand that care is sometimes so much better at home or in a
hospice. We have now thankfully moved on considerably and there are few now who
don't understand the power and relevance of the hospice movement.
There are however interesting parallels with the debate
on A+E and the work that the Red Cross, RVS and Age UK have been doing in
supporting frail elderly in casualty. At our recent Hustings, the Greens and
UKIP said we don't want volunteers in hospitals doing this work- it should be
done by the NHS. Of course I don't blame them for saying this; it was based on
ignorance of what the sector does (fortunately Wilson and Nandy are very
supportive). There is no doubt we will see a greater partnership between sector
and state develop over the years to come. Both main Parties are making strong
offerings on the NHS. Cameron was good on the role of charities in his TV
"debate" appearance and Burnham has explicitly made a clear offer
for our sector. If we are to have a 7 day a week health service (and we
certainly need one!) then the role of the third sector must expand. Our unique
offer of paid staff and professional volunteers is just what is needed.
But back to the Hospice, the world of this movement is
changing. We have some interesting developments in providing high quality care
at home which helps families to manage better and respite care is playing a
bigger role. But still, far too many people die in a hospital bed when they
want to die at home or in the loving environment of a hospice; where your
family can stay with you, you can bring your dog and have more influence over
the care and environment you are in.
And finally, for ACEVO members we are doing a survey
today to inform the work of the Low Commission on better regulation. We want
views particularly on the Charity Commission, who have taken some very
controversial decisions of late, which has caused much concern in the sector;
not just around Muslim charities. So if you are a member do respond to the
survey!!
So now we look forward to Easter. I was at Palm Sunday
8am Mass this morning (somewhat early given the clocks going forward). Our
Parish is soon to acquire a new Vicar; a
woman who once lived in Charlbury as it happens. She takes over the living in
June.